The tireless campaign of inspirational Caroline Springs youngster Maddison Parker reached new heights last week when a flag was raised outside Treasury House.
The ‘EDS flag’ represented Ehlers-Danlos Syndrome, a genetic disorder that affects Maddy, 11, and her younger sister Kayla.
Maddy has spent the past two years raising awareness of the debilitating disorder, which can leave her with up to 20 dislocated bones per day.
Premier Denis Napthine said it was a great honour to raise the flag with the Parker family to create more awareness of EDS.
“Maddy is an inspirational young Victorian who is committed to helping others,” Dr Napthine said. “It’s an honour to fly the flag outside Treasury Place until June 6 to help Maddy and Kayla raise awareness for EDS.”
Minister for Youth Affairs Ryan Smith said he was delighted to have first met Maddy at the Victorian young achiever awards this month when she won the award for ‘community service and volunteering’.
“It is great to meet Maddy who has raised over $10,000 to help those with EDS. It’s inspirational to meet someone who is so determined to improve the lives of others also living with the illness,” Mr Smith said.
Melton City Council also raised the flag earlier this month to coincide with EDS Awareness Month.
Maddy said she was blown away by the state government’s support.
“Meeting the Premier today and explaining EDS was awesome and a huge step in my campaign.”
Beaming parents and Maddy’s number one supporters Kathy and Simon said they were exceptionally proud of the girls and their work to lock in an event with the Premier and minister Smith to raise awareness.
